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your lived experience as a parent carer?
You can leave us your feedback at any time by clicking the button below:
Are you a voluntary sector colleague or
professional that would like to share feedback?
You can leave us your feedback at any time by clicking the button below:
Feedback Updates
NHS England is considering potential future enhancements to the Mental Health Support Teams (MHST) offer, including
the range of children and young people's mental health and emotional wellbeing needs which are supported. The
link to programme (in case you are not aware of it) is: Trailblazers
NHS England is keen to scope and prioritise the potential enhancements and are therefore launching a scoping survey which will run to 30 June 2023. This is a brief survey (only 3 questions in total!) focusing on clinical need and interventions for an increasing range of CYP including those with neuro-diversity: MHST Survey
The Regional Learning Disability CYP Leads would be grateful if you could take a few minutes to complete this survey
and help to guide the future of the work of these Teams.
Please feel free to circulate this to your local contacts and delivery partners as they are keen to hear from as many
stakeholders as possible including MHSTs, education settings, ICB leads, specialist provider leads, regions etc. and children and young people and their parents/carers.
NHSE will be reviewing the full MHST service offer, across all of their functions, but the scope of this survey is predominantly interventions for mild to moderate mental health needs. Please note that this is not an indication that future programme expansion has been confirmed, rather NHSE are considering possible developments to the breadth of
the service offer, both for existing and any (to be confirmed) future teams.
8th March 2023
24th February 2023
Annual Survey 2023 Results
Please find below the Report and Reponses from the Annual Survey conducted earlier this year:
Should you have any feedback in regards to the Annual Survey, please complete a feedback form using the button at the top of this page.
9th January 2023
** SPCF Annual Survey **
The 2023 annual survey is now available, it should take approximately 10-15 minutes to complete.
Unfortunately we will need to ask you to complete the form separately for each child (if their experiences are different), apologies for any inconvenience caused.
Please follow the following link:
https://forms.office.com/e/k1i5i8QLyP
The survey will be open until Monday 6th February at 11:59pm.
12th December 2022
Neuro-Developmental Disorder Pathway - During the month of September, SPCF received contact from parents highlighting that there seemed to be a lack of pathway for those children and young people who did not fit in the ASD/ADHD pathways. We challenged the head of the pathway as we were assured that this would be a pathway for all those who had a NDD concern. During October, we were informed that there were in fact some gaps identified for certain conditions. We asked for communications to be sent to parent carers as soon as possible as it was not what the path had originally been described as. We chased this repeatedly and after receiving no response from the pathway lead we had to escalate it further. We have now finally received the communications: Letter to Parents
5th October 2022
Parent carers have fed back their experiences and issues in regards to ECH needs assessments, plans and annual reviews. This feedback has been used to make improvements to the system that is currently in place by creating an online portal based system. More information can be found on this interactive poster: EHCP Poster
The team would also like to invite a few volunteers from SPCF to Endeavour house, Ipswich to review the new EHCP online portal functionality and provide some feedback. They are looking to host the session on Friday 18th November. If you would like to attend the session, please email us on info@suffolkpcf.co.uk with the times that you are available.
15th July 2022
DfE Revisit Survey Results
Please find below the Report and Reponses from the DfE Revisit Survey conducted earlier this month:
Should you have any feedback in regards to the Survey, please complete a feedback form using the button at the top of this page.
10th June 2022
Encrypted Emails
A trend was highlighted through the feedback form that Encrypted Emails were very difficult to open and it was causing parent carers to travel to libraries or friends/relatives houses to be able to open on a laptop or PC. This was raised with Suffolk County Council Information Management department in February and we were then contacted in March with information that they have recognised an issue with iPhone accessibility that was being investigated.
We followed up this week and received a further update that the IT team have found a way to continue the security with encryption but send in a way that is easily opened by all including iphone/ipad users. Emails should now be sent under an 'Encrypt Only' marker instead of an 'Official Sensitive' one. Guidance has been issued to SCC staff and they should be sent in the correct forum from now on. However, if you do experience any issues, please do feedback to us.
27th April 2022
Personal Budgets
We have received feedback from various members asking for clarification with regards to the Person Budgets eligibility criteria.
We are pleased to update that Activities Unlimited has rewritten their page to clearly explain the service offer. Details can be found by following the link below:
Personal Budgets Criteria Explained
Thank you to all the members who took time to feedback to the forum and we hope this update will help.
14th March 2022
Annual Survey Results
Please find below the Report and Reponses from the Annual Survey conducted earlier this year:
Should you have any feedback in regards to the Annual Survey, please complete a feedback form using the button at the top of this page.
1st March 2022
Firstly, a big thank you to all whom have used the feedback forms, it has really helped to have all the feedback in one please for consideration.
A trend that has been highlighted through the feedback form was that Encrypted Emails are very difficult to open and is causing parent carers to travel to libraries or friends/relatives houses to be able to open on a laptop or PC.
This was raised with Suffolk County Council Information Management department before the half term break. We have been contacted today with information that they have recognised an issue with iPhone accessibility and this is being investigated. I was also sent a range of encrypted emails for me to open via my mobile (which is Android) and I supplied screenshots of my process, including when I faced difficulties. We now have another Management Committee member doing the same with their Apple device.
Information Management have also asked me to request from the membership, any error messages that you may encounter or any screenshots you may have to further assist with the investigation. These can be sent to the Page using the message facility or to info@suffolkpcf.co.uk.
The information collected will be anonymised and shared with the Information Management department to assist their investigation. It will not be shared with the wider membership, other than in update form.
16th February 2022
We shared the Sendiass 'Drafting and Finalising an EHC Plan' on our social media a few weeks ago. We received feedback that it would be beneficial to parent carers if there was a section that had information about what would happen if things didn't go to plan.
We contacted our friends over at Sendiass in Suffolk and shared this with them and they didn't hesitate to action it. We have received confirmation that the session will now include slides with information on 'What to do if...'
More information can be found out the training courses as well as other useful information from the Sendiass website: www.suffolksendiass.co.uk
If you are unable to join the Sendiass session, and still require further information on EHCP plans and raising concerns, please follow the Suffolk Local Offer link for information: www.infolink.suffolk.gov.uk/kb5/suffolk/infolink/advice.page?id=nT6Qg5Bs8n4