Suffolk Parent Carer Forum
SPCF’s aim is to ensure that every parent carer in Suffolk's voice, views and experiences matter and that they contribute towards developing and improving services. We do this by reaching out to parent carers to be involved by representing parent carers experience and expertise to decision-makers and making recommendations for service improvements.
We participate in a wide range of local projects and events
News and Updates
The Winter edition of our newsletter is now live! This edition has updates and information for families on SEND Education and Health in Suffolk. It also offers avenues of support and activities over the seasonal break.
Click on the button below to take a look!
This year, we ran our Annual Survey from 14th May for 3 weeks to enable participants enough time to express their views and provide SPCF with a clear picture of how parents and carers were feeling about Education and Health services in Suffolk for their children and young people with SEND. We intend to use the findings of the survey to steer positive change with SEND & Mental Health Services in Suffolk. You can access the report below.
Hello, I just wanted to say thank you. I commented on a post 5 weeks ago about personal budgets having previously been told by someone my son wouldn’t be entitled to it because it wasn’t a specialist school. An administrator from SPCF, replied and said to question this. I finally sent a letter yesterday and have heard back already. They have said he is entitled to a personal budget. Thank you so much if it wasn’t for you guys, I would still be struggling to pay for his fuel to get him to school. Thank you.
"Based on the PCF’s report and my observations on how members of the PCF represented the interest of families of children with SEND at the meeting today, it is clear that the PCF is doing some great work on behalf of parents in Suffolk"
-Brian Gale - SEN and Disability Professional Adviser - Dept for Education
Our Aims & Objectives
To be the strategic consultative body within Suffolk representing families of children and young people with special/additional needs and/or disabilities, providing a liaison point for Statutory and Voluntary Agencies within Suffolk. This will be achieved by providing Parent Carer Representatives to work in co-production with local services.
To consult with and inform our membership with a view to ensuring that all children and young people in Suffolk with special/additional needs and/or disabilities meet their full potential and achieve the best possible outcomes.
Meet The Team
Chair of Operations
I’m Claire. I am blessed with two wonderful children. One of my children has complex SEND and health needs. I have a background in both health and social care. I love to learn. I have completed many qualifications, courses and awards in SEND, SEND educational law, mental health and healthcare. As a parent carer I have much lived experience in neurodivergent differences, learning difficulties, mental health, physical health, disabilities, Education Health Care Plans, school difficulties and home education. Giving families an uncensored voice is so important to me as well as fighting for better outcomes for the children and young people of Suffolk.
Chair of Trustees
I’m a mum, in Lowestoft, Waveney, of four, now adult children all who have or had SEND, three with a statement/EHCP. My children had a range of SEND, ASD, Dyslexia, Dyspraxia, Selective Mutism, Speech and Language Difficulties, Hearing Impairment, Mental Health Difficulties, Anxiety and School Refusal. I’ve worked in SEND for almost 30 years both in school, as an Independent Support Coordinator as well as voluntarily.
Sadly I lost my son Danny when he took his own life in 2018. Danny had an EHCP at the time of his death. I now work in suicide prevention both professionally and voluntarily. I have a passion for self harm/suicide prevention in young people, especially those with SEND and autistic people.
I founded the charitable organisation #LiftLoudForDanny following the loss of my son providing support for those with mental health difficulties and their carers. I was a founder member of the original Suffolk Parent Carer Network until resigning in 2017. I am also passionate about improving outcomes for our children, young people and their families in Suffolk. Things have to change.
Treasurer and Trustee
I am Claire, I have joined SPCF as a trustee as I believe that every child has the right to the best possible health and education outcomes. I have a background working in charity sector support services, and also bring my experience parenting my 4 boys, 2 who have autism, navigating both mental health and education systems for them.
Safeguarding Officer and Trustee
First and most important I am a family man, my world revolves around my wife and son. My son is autistic, non verbal and he is the most incredible person I know. During the time he was being assessed and diagnosed to be on the autistic spectrum, I have met some wonderful new friends.
What experience do I have, Being a farther, my son who is teaching me something new every day, I have been a trustee for a local nursery, and I am a school governor, I am also on the local Parish Council. I know my own experience but more importantly my sons, anything I can do to learn more to help my son but at the same time if I can use what I have learnt to help others on this journey. My hopes are that we can give our children/young adults the best future possible, I know at this point in time with the support available for our children/young adults and the whole family is not what it should be. I want to help bring changes not just for today but give our children/young adults and even grandchildren a proper future but the only way that can happen is together, supporting each other. It's going to be a long journey with big challenges and yes maybe 1 or 2 brick walls to navigate round but as we will change things, we can change the future for the better for our children/young adults to have the support in place they you need/deserves.
Trustee
I am Faye, I am diagnosed with ADHD myself and I am also a parent carer of 3 children with a range of complex needs and mental health difficulties.
I have been involved in many different SEND related services over the last decade. Bringing a mixture of lived and learned experience to the management committee.
Administrator
